SCD can have a negative impact on education, employment and relationships1–5
PAEDIATRIC PATIENTS GLOBALLY
said it affected their
achievements at school3*
had to retake a year
or a class3*
ADULT PATIENTS IN THE UK
seriously considered reducing
their working hours, with
48% (~96/201) having done so4†
their job, while 30% (n=~59/198)
opted to stop working4†
had to take time off work4†
say SCD has stopped them finding
suitable work or progressing in their career
(49% n=~118/241 and 51% n=123/241, respectively)4†
Social and developmental effects of SCD
Living with SCD can affect children and adults socially, emotionally and developmentally, further impacting patients in their education and employment:5
- Feeling different from peers
- Missing out on things
- Anxiety about their condition and how it will present
- Concerns about falling behind due to missed school
- Fatigue and pain limiting participation in sports
- Feelings of failure
- Difficulty communicating the emotional impact of their disease with others
- Employers being intolerant of absences from work due to painful crises
- Difficulty in planning leisure activities
- Difficulty forming relationships
*Results of a questionnaire completed by 2,145 patients with SCD globally.3
†Results of a questionnaire completed by 299 patients with SCD in the UK.4
Abbreviations: SCD, sickle cell disease; VOCs, vaso-occlusive crises.
Swanson ME, et al. Am J Prev Med. 2011;41(6S4):S390–S397.
Brandow AM, et al. Br J Haematol. 2009;144(5):782–788.
Osunkwo I, et al. Poster presented at the American Society of Haematology Annual Meeting; December 7–10, 2019; Orlando, Florida.
Inusa B, et al. UK Results from the International Sickle Cell World Assessment Survey (SWAY): Patients with Sickle Cell Disease (SCD) Experience Work Impairment and Decreased Productivity. Oral presentation, presented at the Annual Scientic Meeting of the British Society for Haematology 2020; Nov 09–14: Virtual Event.
Chakravorty S, et al. Arch Dis Child. 2018;103(12):1104–1109.